Hospital support crew

note the black eye and sorround- its from the first operation.

family during 14 days of hospital were running a program to be there at all time to entertain, assist and be there for games or comfort

whether ts night or day we were always with Josh to be at hand if he needed it.

One important item for extended hospital days is the DVD player we take it- along with some great movies its a good distraction.

V is for Victory

Day 2 after the first surgery

feeling pretty sore and sorry with things

and we are struggling to hold of pain and nausea

another 5 days in bed before its back in for a bigger operation

Over 7 days in a bed

96 wires coming out of the head

and a drain for fluid as well.

2 jobs

map the functionality of the brain- where are all the working parts located

also

work out the exact spot where the E is coming from

pain and nausea was a real fight to control

Into the Ward

its up to the 8th floor for rest and recovery after a long operation.

he is now plugged into a video and monitor which watches and records the brain activity when he has a siezure/s and tries to accurately pin point where it is coming from precisley in his brain.

96 wires all nicely bundled up and attatched to a machine and also a drip bottle to take excess fluid off the brain...

recovery takes well over 48 hours until he starts to feel human again

lots of pain, headaches and nausea.

and its a challenge to work out which drug helps the pain without causing too much nausea

7 hours later....

in recovery 7 hours later and how his and our world has changed

operation goes smoothly and we are now plugged into the machines will 96 cables out of a point in the skull.

Joshua has travelled through this in his usual style- brilliantly!

recovery takes somewhere around an hour as anyone who has had a major general and then its up to the ward....

Into Surgery.....

here we go, the first surgery lasts 7 hours and its to implant 96 electrodes or plates across and into the brain

at this point joshua is normal and feeling pretty happy with the world

Recent Surgery

to try and stop the "E" it was decided to map the brain to try and locate the area in the brain causing the problem

so its into the RCH for 2 weeks of and 2 major surgical procedures

here we are before surgery

marking the spot

gowned up- its off for an MRI first.

in the last 3 years Joshua has had many many MRI's to try and locate the problem

apologies for the blurring pics- its a nervous dad and a shaky i phone

but guess who aint shaking....he gets to watch Disneys "Cars"while lying next to the mega magnet!